Your DNA is perhaps the most important and intimate information out there. Your DNA holds information about your personality, your genes, your health, your family and their history too.
This information is not only vital but also very sensitive and it could lead to devastating results if this information reaches wrong hands. It is important for an individual to realize that disclosing this information to any one is not okay, the consequences could be damaging.
DNA testing is done by doctors at many stages, for various reasons. Sometimes it is done to check the transferability of a disease from parents to a child, sometimes for analysis and so on. There are chances of this information going public.
WHAT IS DNA ENCRYPTION
Encryption is a technique wherein data is encoded. This technique is applied to DNA testing will not only keep the information private and safe but also it will make sure that it is decoded by those who are meant to perform the task. This is a simple procedure where each participant has to encrypt their genome using an effortless algorithm on their smart phones or computers, whatever is convenient. The encrypted information would get uploaded into the cloud and the researchers would analyse it using a secure, multi party computer system. They will then choose the information that has to be shared and this way it could be controlled.
This system seems to be time-consuming but it isn’t. It is a matter of minutes wherein you upload, people sitting on the other side of the computer analysis and then share only the genetic information required.
There is an act called Genetic Information and Non-Discrimination Act which was passed in 2008 by the Congress but multiple loopholes in the law and the act never ensured safety and privacy in genetic testing. The protections of GINA never implied to many important aspects, for example, they didn’t imply on life insurance or disability insurance resulting in rejection by companies in case of risky genetic information.
It is scientifically said that health of patients is impacted by fear of being genetically discriminated. Here is when a patient needs to strike a balance between his private information and his issues. He needs to work on how much and what to share with his doctors or researcher, in order to get a treatment for his issue without compromising on his personal life and privacy. Ensuring privacy will give the patient peace and satisfaction in the long run.